Still no MRI Matt has indicated that he is afraid at what they might find so needless to say he is very active when he needs to remain still. Mom Posted a update I will copy it here.
Again the MRI didn't happen. Matthew couldn't or (possibly wouldn't) be still. So, to try again Matt has to be sedated. At first Radiology told Bob they couldn't get Matt in again until March 12th. I found that totally unacceptable, especially since Matt was supposed to have eye surgery on January 28th and one of the reasons for the MRI is because of Matt's left eye lid closing. Matt's MRI is now January 27th at noon. Surgery has been postponed and he will be seen by the Opthamologist and Surgeon on February 8th to talk over doing surgery for both eyes at the same time. Matt had confided in Nonnie and me, he was afraid to have another MRI because he was afraid of the results. I tried to comfort him, told him "whatever we found out, we will deal with it and do what is best for him and what he wants to do"! Also, to pray and reminded him of the verse: Isaiah 41:10 ~ So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
Tomorrow Matt has an appointment with Dr. Lewing/Oncologist to make sure Matt can be sedated for the MRI. Also, we want to talk about Matt doing WATER Therapy because he is at a wall with Physical Therapy, his left arm and leg are stiff and difficult to work with and the Therapist aren't seeing progress. He does have an appointment to have Botox again. He had Botox before he left the hospital, but there is a waiting period between shots.
We found out today, good news, Matt will be getting his COMMUNICATION DEVICE this week! This will remove A LOT of STRESS for Matt trying to talk to us and us trying to understand!
