Yesterday Matt was moved to the REHAB floor/5th floor - 5 Sutherland. His room number is #1 at Children's Mercy. Matt had a busy day yesterday. All therapies and a couple of exams. He had to go to the Ear, Nose & Throat doctor to have is hearing checked. His left ear is perfect, but his right ear drum was actually sutured shut because of the leak. Now, he can barely hear out of his right ear and he cannot see out of his right eye - all because of the damage on his nerves from the tumor. Early yesterday morning, Matt woke me up with 'sounds' he was making. That is a good sign. He has been 'weepy' the last few days - either because he's frustrated and/or in pain. Bob thinks it's only when I am with him. Possibly he feels ok to let his emotions out?
The Doctor's suggested Matthew be put on a medication for a syndrome they think Matt might have - it's called "Locked In" Syndrome. He started the med on Wednesday. They are hoping this will help Matt become more 'awake' - so to speak. When I kissed Matthew good-bye last night - he did flinch a little bit! I also noticed last night - he grabbed the bed rail.
To be totally honest, yesterday was 'one' of the more difficult days I've had. I think it was a mixture of emotions, mostly realizing what a strong son I have, the difficult road a head of him and all of the damage the tumor has done to Matthew's body! Also, because I know he wants to communicate with us so badly...and I would give anything to take his place - to make everything all better for him. (I know Bob feels the exact same way)! Thank God for Bob - he is a strong man; a wonderful father to Matt and Emileigh and a thoughtful husband - he is our ROCK! We will continue believing GOD has a SPECIAL plan for Matthew and know he will give Matt and our family the love, strength and courage we need to help Matt! We have FAITH! We have family and friends who love and pray for Matt. By the Grace of God Matthew will be healed and we will all be inspired by Matt's journey.
WE BELIEVE IN THE POWER OF PRAYER AND POSITIVE THINKING!
